>Well I owe all of you who follow and comment on my blog a big apology. I should have updated this on Friday and I’ve neglected to do so.

So first things first. It looks like I got ahead of myself on the Tuesday…no change there but they’ve now explained how things have changed slightly which mean that the way I look at my figures now needs to change. Importantly though my paraprotein HAS gone down. From 15 to 12. Not huge but still a decrease which means that, at the moment, I am still responding to the velcade…big thing for me…almost bigger than the reduction in the pp. So what it means is that what I was using to predict my results, my total protein, is now normal. Basically where for normal people the paraprotein is 0, the total protein is normally between 60 and 72..mine is now down to 64 so I should no longer look at that as an indication of how the myeloma is responding as it is the same as anyone who doesn’t have mm.

So it’s good news really. The other bonus is that it’ll stop me from trying to predict the results every 3 weeks. Now I’ll just have to wait till the pp rests get back.

In again today and hopefully all is going fine. Seem to have a slightly low blood pressure so things have taken a bit longer. Thats because the velcade i’m on can cause hypertension so they have to be a little bit careful. Still will hopefully get home in time for the school run.


About Deb Gascoyne

I am wife of one, mother of two and a person in my own right :-) I have used my diagnosis of myeloma to allow me to focus on what I CAN achieve and not what I can't. My blog is a way of me spilling out....it is for me more than you I'm afraid. But if it helps you along the way, that is an absolute bonus for me :-)
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One Response to >Apologies

  1. Sandy says:

    >We are going to continue to intend that the medical team is making the right decisions for your management of the MM and that you are continuing to make good strides in keeping up your strength – and this is for the highest and best good of all concerned!!! so be it and SO IT IS!!ANd you don't have to apologize to your readers… ever. Just hearing this good news is great!


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