I’ve been sat here at the Marsden for a while now as the whole transplant process begins today. Nick dropped me off at 8.30am for what is likely to be a pretty long day. I’ve already had an ECG which I presume was fine as they have now hooked me up to 2 hours of fluids. I believe that’s to help stop some of the side effects. Apparently I have to drink 3litres of fluid a day too….though to be honest I’m supposed to do that anyway.
Once the fluids have finished it’s a cocktail of anti-emetics to prevent sickness and then 2 hours of cyclophosphamide which is the chemo. Hopefully after that I can leave as we’ve got to drive down to north Devon…hopefully with me feeling ok!!!
I’m not too worried about it all….yet!! Although I did speak to another myeloma friend yesterday who warned me that her hair had just fallen out-2 weeks after what I’m having today. Fingers crossed it won’t happen to me till 2 weeks after the chemo on the 18th. But what will be will be and hopefully I’ll buy my wig in the next 2 weeks anyway.
Still having problems with my neuropathy and the tremadol they gave me the other day doesn’t seem to be working as effectively. I’ve just spoken to one of the doctors and they’re referring me to the pain clinic/team as apparently it’s likely to go on for at least a few months 😦 In the meantime they’re giving me an even stronger version of morphine!!
Right I’m going to try to have a kip now…didn’t sleep at all last night with the neuropathy and worrying the kids were going to wake up in my sisters house.