Day 27 –

A good couple of days really since I last wrote. It has been helped I am sure by the fact that after a fairly restful and nice weekend with the kids, that my sister came and took the kids back up to the Midlands with her on Sunday till today. This is another of my lovely sisters, this time, Ruth and her husband Mike (and of course their older kids).

The kids have had a fab time going dog walking, playing frustration (will they ever tire of that game?!) and Top Trumps, swimming and spending time with their Aunt, Uncle and cousins. Apparently Rebecca wants to go and live there as they have automatic lights for the toilets….very funny!! And I think my sister loved the experience too even though she’s not used to the early mornings!!!

So for me, it is has been the usual of sleeping in the morning, having lunch and then generally having a sleep in the afternoon too. But the good news is that I now seem to be a bit more with it in the times that I am awake and I am becoming more and more thankful for that time. Life isn’t normal but there seems to be that light at the end of the tunnel where I can imagine being able to do more things for myself. Today, I even made cupcakes for the kids to take out with them tomorrow…something I really didn’t see myself doing a few days  ago. And the other day, I managed to read a chapter of a book. It sounds small but until now, I haven’t had the concentration to manage reading, so again, it is another big step forward.

All in all, I feel like I’m doing reasonably well. The throat seems to be back to normal now which is great. In fact, apart from the tiredness and inability to focus, the only other outstanding problem for me is the peripheral neuropathy. That won’t go away no matter what and even the morphine isn’t fully helping anymore. I spoke to my specialist nurse today and she has said they will refer me when I go in on Thursday. Apparently there is an anaethatist who specialises in chemo caused neuropathy and they will put me onto him to see how he can help. They always told me it could be 3 months before I got the feeling back, but I don’t think they truly thought that would be the case. I am now over 2 months on, so it isn’t looking good and there is a chance that this could be a permanent problem for me.

I am back at the hospital on Thursday to see how my bloods are doing so we’ll see….we’re hoping they are continuing to progress the right way, and that I might get a couple of weeks before the next one after!!! Visits are so boring and drawn out!


About Deb Gascoyne

I am wife of one, mother of two and a person in my own right :-) I have used my diagnosis of myeloma to allow me to focus on what I CAN achieve and not what I can't. My blog is a way of me spilling is for me more than you I'm afraid. But if it helps you along the way, that is an absolute bonus for me :-)
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One Response to Day 27 –

  1. Since it’s Thursday, I’m intending that your blood scores are right where you want them to be and you get the two weeks break you want.


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