Ok so now I am slapping my wrist for being over-emotional and a total drama queen! The hospital called me at 8.30 this morning (thank you Royal Marsden for being so caring that you called so early!) to say that my paraprotein level has dropped back down to 2 and last months was probably a blip!
So for now, all is good….and hopefully you won’t have to read another post like for some time!
…..and breathe…. 🙂
About Deb Gascoyne
I am wife of one, mother of two (& a dog!) and a person in my own right😊. I have used my diagnosis of myeloma to allow me to focus on what I CAN achieve and not what I can't. My blog is a way of me spilling out....it is for me more than you I'm afraid. But if it helps you along the way, that is an absolute bonus for me :-)
Diagnosed in 2009 with smouldering myeloma, I started treatment in 2010 and had a SCT in 2011. I’ve was on maintenance until November 2018 but my figures went up so officially relapsed. I have been on dara since 2019 and had my second transplant in September 2020. Still on dara and keeping fingers crossed.
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Phew. Can’t help but worry though, can we. I’m busy planning things for the autumn, and the spring. And then suddenly one thinks “can I really plan that far ahead, what if I don’t get a long remission”. It’s all totally grimbo, but I am really pleased you dodged the bullet for another month (or hopefully many)
And me Alex, and me. I think I had been taking my remission for granted to some extent! I was suddenly hit with what I might lose!
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Great news x
That’s fantastic Deb, really cheered me up. Now go and enjoy that holiday ! Jeff