#MyelomaAwarenessWeek Day 3

Yesterday Myeloma UK published a great video by another couple who live with myeloma in their lives. It’s well worth a watch if you didn’t catch it via my Facebook page.

It talked about how you learn to live with the ‘new normal’ and I think that hit the nail on the head. People often say to me that they can’t believe how well I cope with things. But the reality now, seven years after my initial diagnosis, is that my life now is just what it is. There’s no point harping back to how it used to be for us, what could have been had I never got the diagnosis etc.

We’re lucky. I often say that. I’ve lost too many friends to myeloma so you won’t catch me moaning (well not very often!) about our situation because it could have been so much worse. Our life is pretty good really….despite the myeloma. It does make us make decisions a little differently and what we choose won’t always be at others would expect, but other than that, life is just what it is.

I am a firm advocate that you can either choose to be a victim or you can choose to deal. Don’t get me wrong…I am very aware that the journey for some people is bloody hard! But I do believe that you can choose the uphill path or the flat one depending on your attitude. Two of my closer myeloma friends, Pamela and Sandra, who have now devastatingly passed away, were a real inspiration to me and definitely took the decision not to be victims – they were positive right up to their last days. They taught me so much and I miss their common sense attitude and ability to see the good out of a terribly sad situation. But through that attitude, came the fact they brought up amazing families who continue to do them proud every day and who have also learnt that even when terrible things happen, you can choose whether to collapse or whether to live. I hope I can help to pass on that message.


As many people know, I am hoping to spend the next 9 months fundraising again. To date, with the help of family and friends, I have raised over £90,000. I am hoping to reach £100,000 through holding a cheese and wine event and undertaking other activities.

If my posts make you stop and think, perhaps you would like to sponsor me with my #finalcountdown, to support Myeloma UK and help make myeloma history. To do this, please either;

go to my just giving page


text ‘GASC75 £x’ to 70070

e.g ‘DEBG99 £5′ if you want to donate £5


Get in touch and let me know how you would like to help. If you fancy doing an event, you can set up a just giving page and then link to my team page to contribute!


About Deb Gascoyne

I am wife of one, mother of two (& a dog!) and a person in my own right😊. I have used my diagnosis of myeloma to allow me to focus on what I CAN achieve and not what I can't. My blog is a way of me spilling out....it is for me more than you I'm afraid. But if it helps you along the way, that is an absolute bonus for me :-) Diagnosed in 2009 with smouldering myeloma, I started treatment in 2010 and had a SCT in 2011. I’ve was on maintenance until November 2018 but my figures went up so officially relapsed. I have been on dara since 2019 and had my second transplant in September 2020. Still on dara and keeping fingers crossed.
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