I’ve realised I never updated on what happened at our last appointment.
So my numbers went down ever so slightly…good news although unfortunately it doesn’t really change anything.
My consultant has said that he still expects me to start treatment, and probably within 2-3 months. The only thing that has changed is that NICE have now approved a drug called Daratumumab via the Cancer Drugs Fund. And that seems to make my consultant very happy!! He believes it will be much better than the Myeloma XII for me so that’s good news. I’ll still be having a transplant at the end, and would continue on Daratumumab afterwards too (assuming it continued to have the right impact)
I’ve had a couple of weeks not having to think about blood tests or results though which has been lovely. I’m back this week for the next tests though and am already getting twitchy! Stupid! But it has been nice given the knowledge it’s going to be a large part of my life moving forwards!
In the meantime, and until we start, we’re trying to do some bits to the house to make it more hospitable. All a bit of a race against the clock but hopefully we can get the main couple of bits done and that’ll help.
We still haven’t said anything to the kids about it being definite and will wait until we know. The longer they can be relaxed the better. Rebecca has just been accepted on an international experience with her Guiding unit and has just taken up her DofE so has so much on, along with GCSE’s that I don’t want her worried. And Sam is emotional like me so better to keep it back as long as possible!!