Looking forward to an alternative ‘Staycation’

Just 7 days now until my own personal ‘Staycation’. While the world complains about their lack of foreign holidays, I’m looking ahead to my Stem Cell Transplant, assuming timings go according to plan and if there is a bed available for me. I’m strangely looking forward to just getting in there and getting this ‘shit show’ on the road! Having done this before, I know how hard it will be and that it’s a long road to recovery so I just want to get on with it!

I was in hospital today for my daratumumab injection so took the opportunity to drop in on the Apheresis team. I wanted to check that there was no talk yet of postponing transplants given the rise in cases in Birmingham and it being on the watchlist. Thankfully they’ve not heard anything yet, but the next results on Thursday will be big I’d imagine! I can’t bear the thought of not going in next week. The sooner I can get in, fingers crossed, the sooner we can get on the road to a better form of normality for the whole family.

In the meantime I’ve kept myself ridiculously busy. We’ve managed to get Nicks study sanded and painted and had it not been for running out of paint for the final wall, it would have been finished today. Nevermind though as I’ve done about 5 hours a day on average just with the painting (since Thursday) and am shattered! A couple of days off it will be welcomed. But it does feel really good to have it ready for a socially distanced carpet to be put in next week! And then Nick can move back in and the house can get back to some sort of normality. Until we do the hall, stairs and landing next year!

I’m also hoping to spend the next week planning as to whether I should sign up to the London to Paris next May, for Myeloma UK and my #50KB450. And if so, whether it’s sensible to sign up before I know how my transplant has gone. I would love to have a focus that is positive but it’ll cost me £1000 plus equipment and I’ll also need to raise £2,500. So it’s a big decision and, of course, Nick being the realist out of the two of us, is a little worried I’ll be taking on too much and will make myself ill.

I’m writing this late tonight as I stupidly didn’t realised I’d run out of sleeping tablets last month! I can never sleep on a Dex night (steroids!) and rather than get anxious tonight I tried to put in my positive head and say it might show I didn’t need them…..it hasn’t. So forgive me if I’ve rambled on a bit! Will try the meditation music again.

About Deb Gascoyne

I am wife of one, mother of two (& a dog!) and a person in my own right😊. I have used my diagnosis of myeloma to allow me to focus on what I CAN achieve and not what I can't. My blog is a way of me spilling out....it is for me more than you I'm afraid. But if it helps you along the way, that is an absolute bonus for me :-) Diagnosed in 2009 with smouldering myeloma, I started treatment in 2010 and had a SCT in 2011. I’ve was on maintenance until November 2018 but my figures went up so officially relapsed. I have been on dara since 2019 and had my second transplant in September 2020. Still on dara and keeping fingers crossed.
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