So after a good few days, last week I took a total dip. I kept feeling lightheaded and dizzy and it totally threw me and got me really down. I was meant to be getting stronger not weaker. Nick and I talked and decided perhaps it was to do with a change in my antiemetics and that I would ask my consultant last Thursday. The consultant agreed that they could cause diZziness and suggested I started to decrease them slowly.
Because that’s the sensible thing to do with any drug change isn’t it. You certainly wouldn’t come straight off anything unless that was advised would you?! So you can imagine what both Nick and I thought yesterday when we realised that somehow, I hadn’t put my antidepressants in my pill box…and I hadn’t therefore had any for nearly a week…the time that I’d pretty much felt awful for!
Unsurprisingly, today I am a new person! I feel almost normal again (just the exhaustion and quick to tire still there ) my sickness etc seems to have decreased massively and I am so happy to be feeling like I actually want to take part in what the family is doing.
I can’t believe how stupid I was to have missed that tablet. Out of all of the ones I could have missed it was probably the most serious one. Also explains why I sobbed myself to sleep on Thursday night! But I’m just relieved that I worked it out. Lesson learnt most definitely.
Oh and the other good news is no more consultant calls for two weeks! Will go in for bloods then and assuming things are good still, we’ll have to make the decision whether I’ll go back into daratumumab or make the decision for a treatment free period (very appealing). I think I’ll probably end up back on the dara – mainly because I’ll feel guilty if I relapse quickly and I haven’t done what was offered. But the good news is that if I do go back on it, I can probably do it slightly less frequently which might be a nice compromise.
The other thing that happened this week to make us very grateful was that we heard on the news that the ward I was on at the QE Birmingham had, worryingly, had 3 cases of covid-19, coming from asymptomatic nurses. Given I’d only been out a couple of weeks, it made us feel very lucky for our timing. We always knew that we had a window of opportunity but didn’t expect it to be such a small one. Thankfully I think those affected are ok but it’s very scary for those still on the ward, especially since it has been closed to new patients. To those who think covid is a conspiracy, think again.
So I’m hoping for a nice family weekend where perhaps am a bit more with it. I’ve already prepped and made a guacamole for dinner and I’m not on the floor! Didn’t manage to go to say happy birthday to my niece, but to be fair that was about not being out in the cold for any length of time. Back to the jigsaws and some games … who knows, maybe I’ll even stay up late enough to have a film night with them 🥰🥰