So much to be Positive about

I often tend to write on here when things aren’t going so well or there are complications with my treatment, so I thought I should take the time to write today as it’s been a week of lots of good news and I’m feeling pretty good about life 😊.

My last post covered off the fact that there was discussion about the possibility that patients like me with a blood cancer, might not be covered by the vaccines that we were getting. I decided I needed to know more than what was a ‘possibility’ and so I decided that I would pay to privately have a spike protein test, to see whether the first vaccine had given me any immunity. And the brilliant news is that it seems like it has. In fact, not only has it given me some immunity, it seems to have given me a pretty good level of it. I’m waiting for that to be confirmed by an NHS test that I’ve had since, but it was great to see the results. They were so good that we had to double check them as we thought there was a mistake at first! Not only that, but since then, I have also had my second vaccine so I should be well protected now, for a while at least. The next thing I assume is for them to work out how long these vaccines last for, but for the time being, it has meant that I feel a lot safer than I did two weeks ago.

What is great too, is that most of my family have now had their vaccines now too….certainly my dad, all my siblings, my inlaws etc have had at least their first vaccine as have a number of local friends. Some have even had two now. I know that we still have to be super careful and follow the rules, but it makes me feel that for the first time in 13 months, I can actually follow the rules that everyone else is following, rather than feeling that we have to create safer rules that isolate us all from friends and family.

The next lovely news, is that because of all of these vaccinations, and the change in government rules, I can hopefully see my dad very very soon. I haven’t seen him since last summer, and with his dementia, it has really upset us all as a family that he’s been on his own. But now, with two members being allowed to visit, and others being allowed outdoor visits, it looks like from next week, I can go and see him, and hold his hand. I know he won’t know who I am, but I am convinced that touch and love will help him feel more secure and that it will make him happier even if he isn’t able to show it. One of my siblings saw him last week and took a picture, and it was just lovely to see him looking like our old dad. The hard thing with dementia is that we had even had to stop zoom calls as they distressed him too much so we had all felt very distant from him.

And my final good news that made me smile today when my consultant emailed me (he never stops working bless him!), is that my paraprotein has yoyo’d again and reduced to 5.1 from over 8! We know that it doesn’t mean much, but I will take all the good news that I can, and be happy while I can be. Hopefully it will continue to stay stable and all will stay good.

What else is there to say? I’ve calmed my London to Paris training a little as I think I had forgotten that it was only 6 months ago, I was laid up crucially ill in hospital after my Stem Cell Transplant. I did my first 40 miler on the bike, and two days later did a 17 miler. But then ended up on the sofa for the next five days, absolutely in bits! So this week, I’ve limited it to 30 miles and I’m going to try to stick at a couple of those and a 20 miler each week…for a couple more weeks anyway. I will need to build it up, but I’ve accepted that I need to do it sensibly as there is no point in doing it if it makes me ill. Even I have to admit that fundraising isn’t worth that! But I’m pretty pleased that I’m doing 70 miles a week at the moment – not bad, even if it is on an e-bike (which I LOVE!)

About Deb Gascoyne

I am wife of one, mother of two (& a dog!) and a person in my own right😊. I have used my diagnosis of myeloma to allow me to focus on what I CAN achieve and not what I can't. My blog is a way of me spilling out....it is for me more than you I'm afraid. But if it helps you along the way, that is an absolute bonus for me :-) Diagnosed in 2009 with smouldering myeloma, I started treatment in 2010 and had a SCT in 2011. I’ve was on maintenance until November 2018 but my figures went up so officially relapsed. I have been on dara since 2019 and had my second transplant in September 2020. Still on dara and keeping fingers crossed.
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1 Response to So much to be Positive about

  1. Margaret Jackson says:

    Well done, Deb!! Lots of love as always!!

    M xx

    Liked by 1 person

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