Time for a quick update

Wow where has this year gone. I can’t believe we’re about to hit April and yet I feel like we’ve only just come out of Christmas! It’s mad.

Things are all going relatively well in the Gascoyne household. We’ve continued (with the exception of the kids just after Christmas) to avoid covid – i probably shouldn’t jinx it by saying that but Nick seems to have avoided it despite being at work with people who’ve had it, and so do I….so far!

That said, this last week has reminded me why we’ve tried to be careful. All of us, one by one, ended up with a stinking cold. For most of the family it lasted 2-3 day, for Nick a bit longer, but I’ve had it a week now! And been laid up for a lot of that, or shattered by it. It’s partly my own fault. I kept working as it was an important week for Brain Tumour Research and possibly, just as I was recovering, I did myself no favours by driving around the country. My punishment was the weekend laid up in bed. Not fun for anyone. So my promise to myself this week is to be sensible. Hmmm, we’ll see 🤣🤣.

I’ve also found myself quite down the last couple of days. We lost a neighbour on Saturday to cancer. It all happened so fast as he was fine just before Christmas. A reminder of how cruel life can be. Then I also found out about a supporter who had passed leaving behind a husband and two young children. A little too close to home for me, and a reminder again, of how lucky Nick and I have been with my diagnosis. The husband reminds me a lot of Nick, so it has felt closer than perhaps it might otherwise have done. It’s a tough job when we have to deal with people passing away. I still love it, but just wish at times we didn’t have to do that side of it. But I suppose that is exactly why we are needed.

In general though, things are good. My numbers seem to be stable still, I feel lucky to be able to work, to keep cycling (when I’m not in bed ill or working!!), to keep fundraising and basically to be here! With all that’s going on in the world, sometimes it’s good to remind ourselves about the positive stuff we have in our lives!

Right it’s 1am, so I really must try and sleep. Flipping restless arms and legs. My only real complaint at the moment!


About Deb Gascoyne

I am wife of one, mother of two (& a dog!) and a person in my own right😊. I have used my diagnosis of myeloma to allow me to focus on what I CAN achieve and not what I can't. My blog is a way of me spilling out....it is for me more than you I'm afraid. But if it helps you along the way, that is an absolute bonus for me :-) Diagnosed in 2009 with smouldering myeloma, I started treatment in 2010 and had a SCT in 2011. I’ve was on maintenance until November 2018 but my figures went up so officially relapsed. I have been on dara since 2019 and had my second transplant in September 2020. Still on dara and keeping fingers crossed.
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1 Response to Time for a quick update

  1. Margaret Jackson says:

    Hi Deb Good to hear from you! Sorry not have been in touch with you for a while – I’ve been having a fairly torrid time over the past few months with arthritis in my shoulders which has drastically limited my mobility. I was due to have cortisone injections into my left shoulder and back but had to forego that appointment as Storm Eunice was too strong for me to venture out. It was rescheduled for 4th March but in the early hours of that day I was blue-lighted into A&E with chest pains and a suspected clot on the lungs (that was later discounted after a CT scan) but it meant I had to miss that appointment too! So it is now scheduled for the end of April…!in the meantime everyday activities are a bit of a trial with pain levels varying from day to day making planning any activities very much last minute,” Do give me a ring when you have a moment! Lots of love as always! M xxxx Sent from my iPhone



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