No time to think!

I can’t quite get over how fast 2022 is disappearing! That we’re nearly halfway through it already. And that I still think it’s only just been Christmas! I’ll be sorting present lists out before you know it.

That said, I have to be pleased that every month that goes past is another month that I’ve stayed healthy, in remission and don’t have to worry about the journey ahead! For which I am superbly happy about. I am so so lucky that my myeloma journey has been so much easier than others I know. That to date, my treatment hasn’t been too toxic (ok we won’t talk about the two stem cell transplants!!). And that I’ve stayed relatively well for most of it.

And because of that, Nick and I got to celebrate our 20 year wedding anniversary on the 11th May 🥰. We’re actually going to do a small party in June (didn’t have time to fit it in before that!!) but we’re just so grateful to have made it. We genuinely didn’t think it would be the cards when I first got diagnosed. We weren’t even sure we’d make 10 years. So we decided we wouldn’t wait till 25 to have a party but make the most of the fact that I’m here, fit and that Nick hasn’t decided to do a runner yet!! I’ll never forget my darling dad apologising to him for getting the ‘broken’ daughter – who needs enemies!

I’m not a particularly gushy person – I worry too much that people will think I’m boasting or gloating. But I am so proud of our relationship and how hard we work at it. It’s not always easy and bloody hell, adding myeloma into the mix has made it even more challenging at times, but we are pretty good together. I put up with his whisky and he lets me cycle ;-). But seriously, I’ve been lucky to have someone who has supported me so much over the years, both before and after my diagnosis. He’s been so patient and tolerant of me when I’m at my worst. And I put up with him snoring!! I think I might have the better end of the deal somehow.

At the moment we seem to be a bit like ships in the night though. Work is mad for both of us with him away a lot and me super busy too – the summer is a mad month for fundraising. On top of that, I’m still training for my London to Paris for Myeloma UK and am trying to fit in 60-100 miles a week, we’re both trying to keep on top of the house and garden and of course Sam is in the midst of his GCSE’s. I can’t say it’s my favourite time as it feels like there’s always something!! But again. I suppose we’re lucky to be working, affording our home, fit enough and lucky (hmmm sometimes I wonder!) to have the kids even if boy child is slightly annoying with exams!

I’m also trying to get my #50KB450 moving again for #myelomaawarenessweek. I’d really love to be able to get people re-energised and doing events this year so that I can reach that target and then purely focus on awareness. I’m at about £41,000 so just need £9000 more! So, if I could get 36 of you to raise £250 we’d be there!! A coffee morning at your workplace/home? A quiz night? A ‘Dinner for Donations’. A challenge event for Myeloma UK? If you can help, please do!! Or maybe you still fancy joining the London to Paris bike ride with me? Or just sponsor me if you haven’t already! ( I think my fab netball team (that I can’t play for now my back is stuffed) are going to do something, but it would be amazing to get a few more events up and running. Just raising awareness of myeloma and encouraging early diagnosis, really helps. And even if your event raised £50, I’d be really grateful – it all adds up and gets me to that total!

I’m also hoping to do one final online auction in October / November, in time for that dreaded Christmas, so if you have anything that I could use, please let me know. Whether it’s vouchers/ experiences / bottles / pictures / signed items, pretty much anything, I can pop it on and see what we can raise.

I promise that when I’ve finished my #50K I don’t plan on asking any more! I’m not sure you’ll believe me on past experience, but I genuinely feel that I’ll have done my bit then and will focus on supporting patients and raising awareness. Something I feel I’ve neglected over the past couple of years as I just don’t have time. So please dig deep now if you haven’t already, and think how you can support. And if you’re one of the fab folk who have been supporting me over the past 12 years, thank you – we’ve raised over £165,000 so far which is pretty damn amazing!!

Wow sorry. This wasn’t going to be a fundraising ask but it’s most definitely become that 🤣🤣


About Deb Gascoyne

I am wife of one, mother of two (& a dog!) and a person in my own right😊. I have used my diagnosis of myeloma to allow me to focus on what I CAN achieve and not what I can't. My blog is a way of me spilling is for me more than you I'm afraid. But if it helps you along the way, that is an absolute bonus for me :-) Diagnosed in 2009 with smouldering myeloma, I started treatment in 2010 and had a SCT in 2011. I’ve was on maintenance until November 2018 but my figures went up so officially relapsed. I have been on dara since 2019 and had my second transplant in September 2020. Still on dara and keeping fingers crossed.
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