Lucky 13 for me!

Thirteen years ago today, Nick and I were told the news that I had (multiple) myeloma against all the odds. The blood cancer that was most common in over 70’s, men and Afro Caribbean’s. Our world turned upside down in the space of a 15 minute consultation, as we were given more details about this cancer that was expected to allow me 2-5 years with my family.

But we’re so lucky and thirteen years on, two stem cell transplants and lots of drugs later, and I’m still here complaining about my messy children and all those other standard gripes that we have as we get older!

I have been to far too many funerals of fellow myeloma patients but it helps me remember that I really am lucky! Not only am I still here, but I work (almost) fulltime, cycle over 100 miles a week and my life is near normal. Whilst we don’t know how long this current remission will last, I am trying to totally embrace it and live life like I’m cancer free. I spent too many hours wishing I’d been more positive after my first transplant and just got on with things then without worrying about what would happen if I relapsed.

So today is a good day. A day that where once I felt sad, now I feel pretty damn positive! I’m here and I’m enjoying life to the full. And hopefully will still be doing these anniversary posts in another 13 years!

About Deb Gascoyne

I am wife of one, mother of two (& a dog!) and a person in my own right😊. I have used my diagnosis of myeloma to allow me to focus on what I CAN achieve and not what I can't. My blog is a way of me spilling out....it is for me more than you I'm afraid. But if it helps you along the way, that is an absolute bonus for me :-) Diagnosed in 2009 with smouldering myeloma, I started treatment in 2010 and had a SCT in 2011. I’ve was on maintenance until November 2018 but my figures went up so officially relapsed. I have been on dara since 2019 and had my second transplant in September 2020. Still on dara and keeping fingers crossed.
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