I started this blog as a means to an end….a way of surviving my diagnosis of Multiple Myeloma that turned our life upside down back in 2009.
I was diagnosed with Smouldering Myeloma in 2009 and finally started treatment in 2010, with my first Stem Cell Transplant in 2011.
Until November 2018, I was really lucky to stay in a ‘Very Good Partial Remission’ – in my mind that should have just been Remission. I was really well, got a nearly normal life back and was living at 99%. During this period I worked, started playing netball and racquetball and did fundraising that has raised over £125,000 for Myeloma UK.
I have now relapsed (July 2019) and am about to take a new path on my myeloma journey – I’m not looking forward to doing it all again, but hope that the treatment will give me a long and healthy remission and allow me to stay alive for many years yet.
I hope that my blog will allow others to see that while the journey you take with myeloma isn’t always easy, that there is always hope that things can be good.