Tag Archives: myeloma awareness. week

The #MyelomaAwarenessWeek Day 7

I’ve spent most of this week trying to post various bits about myeloma, Myeloma UK and how it impacts people. I hope that #MyelomaAwarenessWeek helps people to understand what Multiple Myeloma is, to feel informed and empowered, and maybe even to help. Most people who know me, will know that I’m not shy about talking about my cancer. It doesn’t scare me and I am happy to discuss it with anyone who needs support with their own myeloma, or with people who are just interested. Myeloma doesn’t define me, but I suppose I sort of see it as ‘my job’ to help to raise awareness and funds to help to stop it being classed as ‘incurable’ and make it ‘chronic’ instead.

So, I make no apology now for doing a ‘Call to Action’. If what you have read has made you feel anything, perhaps you would consider helping. Share information with others, hold a fundraising event or help me with my events….all of those things are amazingly appreciated by both me and by Myeloma UK. I’m really wanting to get people to sign up to some of the Myeloma UK events that take place each year. I struggle now as I seem to break bones doing the most simple of things, but I would love people to run or walk or cycle for Myeloma UK and for me. There is an amazing London to Paris bike ride that was launched in 2016 but was such a success and so much fun, that Myeloma UK have already launched the 2016 one – if you’re a cyclist why not sign up? I don’t have a bike…that’s my excuse anyway!!

And if doing something like that or a 5k doesn’t appeal, I’ll be looking for sponsorship, donations and super special auction prizes for my Cheese and Wine event on March 11th! And donations of stationery, graphic design help and time are all so important to me holding a good event…..and hopefully those of you who came to the Glitz and Glamour Ball in 2012, know that I like to do things in style!

Have a think, and get in touch if you want to get involved 🙂

********

As many people know, I am hoping to spend the next 9 months fundraising again. To date, with the help of family and friends, I have raised over £90,000. I am hoping to reach £100,000 through holding a cheese and wine event and undertaking other activities.

If my posts make you stop and think, perhaps you would like to sponsor me with my #finalcountdown, to support Myeloma UK and help make myeloma history. To do this, please either;

go to my just giving page

or

text ‘GASC75 £x’ to 70070

e.g ‘DEBG99 £5′ if you want to donate £5

or

Get in touch and let me know how you would like to help. If you fancy doing an event, you can set up a just giving page and then link to my team page to contribute!

Leave a comment

Filed under Uncategorized

#MyelomaAwarenessWeek Day 4

Last year I decided to do a quick video that people could share to spread the word a bit about what myeloma is and how it impacts the lives of patients. I thought that for today’s post, I would share it again, although I’m a bit sad as they took the music track away from it during the course of 2015/16 due to ‘copyright’! So, if you want to get the full impact, find Jar of Hearts and play that while you’re watching!

And if you think the video could be helpful, please think about sharing it with your friends and family – I honestly believe that if people know the facts, they’ll be braver about asking for tests and we’ll get earlier diagnosis for people.

********

As many people know, I am hoping to spend the next 9 months fundraising again. To date, with the help of family and friends, I have raised over £90,000. I am hoping to reach £100,000 through holding a cheese and wine event and undertaking other activities.

If my posts make you stop and think, perhaps you would like to sponsor me with my #finalcountdown, to support Myeloma UK and help make myeloma history. To do this, please either;

go to my just giving page

or

text ‘GASC75 £x’ to 70070

e.g ‘DEBG99 £5′ if you want to donate £5

or

Get in touch and let me know how you would like to help. If you fancy doing an event, you can set up a just giving page and then link to my team page to contribute!

Leave a comment

Filed under Uncategorized

#MyelomaAwarenessWeek Day 3

Yesterday Myeloma UK published a great video by another couple who live with myeloma in their lives. It’s well worth a watch if you didn’t catch it via my Facebook page.

It talked about how you learn to live with the ‘new normal’ and I think that hit the nail on the head. People often say to me that they can’t believe how well I cope with things. But the reality now, seven years after my initial diagnosis, is that my life now is just what it is. There’s no point harping back to how it used to be for us, what could have been had I never got the diagnosis etc.

We’re lucky. I often say that. I’ve lost too many friends to myeloma so you won’t catch me moaning (well not very often!) about our situation because it could have been so much worse. Our life is pretty good really….despite the myeloma. It does make us make decisions a little differently and what we choose won’t always be at others would expect, but other than that, life is just what it is.

I am a firm advocate that you can either choose to be a victim or you can choose to deal. Don’t get me wrong…I am very aware that the journey for some people is bloody hard! But I do believe that you can choose the uphill path or the flat one depending on your attitude. Two of my closer myeloma friends, Pamela and Sandra, who have now devastatingly passed away, were a real inspiration to me and definitely took the decision not to be victims – they were positive right up to their last days. They taught me so much and I miss their common sense attitude and ability to see the good out of a terribly sad situation. But through that attitude, came the fact they brought up amazing families who continue to do them proud every day and who have also learnt that even when terrible things happen, you can choose whether to collapse or whether to live. I hope I can help to pass on that message.

********

As many people know, I am hoping to spend the next 9 months fundraising again. To date, with the help of family and friends, I have raised over £90,000. I am hoping to reach £100,000 through holding a cheese and wine event and undertaking other activities.

If my posts make you stop and think, perhaps you would like to sponsor me with my #finalcountdown, to support Myeloma UK and help make myeloma history. To do this, please either;

go to my just giving page

or

text ‘GASC75 £x’ to 70070

e.g ‘DEBG99 £5′ if you want to donate £5

or

Get in touch and let me know how you would like to help. If you fancy doing an event, you can set up a just giving page and then link to my team page to contribute!

Leave a comment

Filed under Uncategorized